TEAM HARLEY - THE EDGAR STEPHEN WARD ❤
The Edgar Stephen Ward is the primary cardiac Ward at the Children's Hospital Westmead. This amazing ward looks after very sick high care babies and children. It is our aim to help the ward raise much needed funds to help other babies and children like our Harley so the nurses and doctors can make their Hospital stay as comfortable as possible.
CHD AWARENESS - 1 IN 4 BABIES DIE FROM CONGENITAL HEART DISEASE.
1 IN 8 BABIES ARE BORN WITH CONGENITAL HEART DISEASE.
Our Harley Caleb-Craig McEnnally was the 1in 8 and the 1 in 4.
Please help other families living with a child with CHD by donating to this special cause in memory of our Harley ❤💙
This is just a little bit of Harley's story:
Harley was born with Hypoplastic Left Heart Syndrome on 20/12/14.
Harley basically had half a heart his left side never developed for all the babies born with this heart condition immediate Open Heart surgery is required in the first few days of being born.
Harley underwent his 1st open heart surgery at 3 days old, then again at 4 mths old. Harley was born a fighter and that he did!!
He fought so hard through everything!
Harley suffered a cardiac arrest at 10mths old which his little heart never recovered from, the last 6months of Harley's life was spent mostly in hospital with endless procedures happening to his little body.
Harley is the strongest little boy you could ever meet.
The Heart Centre for Children and the ESW - Edgar Stephen Ward were our 2nd family/home each person that met Harley was touched in someway by our little superhero ❤💙
Harley left this world with his dad, older brother and sister by his side.
I got to spend the last few hours with him bathing him, cuddling him and saying my goodbyes to him in his room on the ward.
The time we spent with him following his passing was beautiful and we would not have been able to have that with him without the hospital and nursing staff we got to know.