For the fourth consecutive year Lou and I are taking part in the City2Surf in memory of our daughter Bianca Caltabiano. We will be supporting The Children’s Hospital at Westmead which conducts research into children living with rare diseases. Research is vital so that early diagnosis, more effective treatments and hopefully cures can be found so that more young lives are not lost.
As part of Team Bianca our aim is to continue raising awareness and funds for research into rare diseases. Bianca passed away at the age of 18 in October 2013 from Haemophagocytic Lymphohistiocytosis (HLH) which is a rare cancer-like blood disorder of the immune system. As part of Team Bianca our aim is to continue raising awareness and funds for rare diseases like HLH and Loeys-Dietz syndrome, both of these rare diseases affected Bianca.
Bianca was inspirational and fought her battle with strength, bravery and dignity to the end and left us all in awe of her resilience and positive attitude. Bianca will always be our little girl and she was the most beautiful, kind and genuine soul you could ever meet. We are so lucky that we had the privilege of being her parents. We cannot put into words how proud we are of Bianca for being such an inspiration too so many people who have supported us over the past 3 years and continue to support us through what is every parent’s worst nightmare.
To date Team Bianca as raised over $170,000 and have achieved the following:
During 2014-2016 over $90,000 has been raised and donated to the Children’s Hospital at Westmead for research into rare diseases. With this money a part-time researcher has been employed who is working on various research projects and papers on rare diseases like HLH.
In 2014, we also raised over $78,000 for the Steve Waugh Foundation which provided 15 grants to young people aged 0-22 who are living with rare diseases for equipment, medication and treatment.
None of this would have been possible without the support Team Bianca has received from sponsors and donors for which we are so thankful.
For every $25 you donate to Team Bianca, you will receive an entry into the Team Bianca Charity Prize Draw to win great prizes from our sponsors. Do you want more chances to win? Once you have donated, go to http://bit.ly/2pIcfmv and you can receive bonus entries into the Prize Draw.
Please help us by giving whatever you can by using the 'Give Now' button. Donations $2 and over are tax deductible. Every cent donated goes to rare disease research at The Children's Hospital at Westmead. Please also spread the word by sharing our page with your friends and family.
Thank you in advance for your generosity, it means a lot!
Jo-Ann & Lou